AllStripes offers a platform for data sharing among patients with rare diseases, doctors and researchers.
AllStripes aggregates and analyzes medical records and sells the de-identified data to pharmaceutical companies to help them develop medicines. In exchange for access to the data, patients gets their fragmented medical records organized into an app they can use to track their treatment and get second opinions.
- Nancy Yu
- Onno Faber
- Congratulations to the adrenoleukodystrophy (ALD) community and @bluebirdbio on the FDA approval of SKYSONA®, a gen… https://t.co/4l2ZOzxOZC
- In 2020, we created a list of rare disease awareness days, weeks and months and have been adding to it ever since.… https://t.co/QACHTmy9vQ
- Patrick’s daughter was identified as having #MMA through #NewbornScreening. A few years later Patrick put out a ple… https://t.co/ot5chM6h8H